The BC Academic Health Science Network (BC AHSN) is pleased to provide the following update on current activities within the BC AHSN organization, which includes Clinical Trials BC and the BC SUPPORT Unit.
Our update on activities for February/March includes:
- BC AHSN shares news of CEO appointment
- Board approves Clinical Trials BC strategic priorities
- BC Data Scout released to stakeholders
- Clinical Trials BC engages community on survey findings
- Methods Cluster TweetChat draws international audience
- Mark your calendars for these March webinars
Last week, BC AHSN’s Board of Directors shared the exciting announcement that Dr. Tom Noseworthy has been appointed as inaugural BC AHSN CEO effective June 1, 2018.
Dr. Noseworthy is well known and widely esteemed as a health care leader, physician and researcher. He joins us from Alberta, where he has been a key leader in the establishment and development of Alberta’s Strategic Clinical Networks – clinical innovation engines that drive improvement in patient outcomes, experience, improved access to health care, and system sustainability. Read the announcement.
BC AHSN is delighted to share news about the development of Clinical Trials BC as a key provincial resource. The BC AHSN Board of Directors has confirmed a two-year budget to support five strategic priorities, giving Clinical Trials BC the official green light to become fully operational within BC AHSN under the governance and oversight of the board and CEO.
Working with partners across BC’s clinical research community, Clinical Trials BC is focused on five strategic priorities to maximize the health, educational, and economic benefits of clinical trials to the citizens of BC:
- Business development – Attracting new investment by networks, associations and industry partners by promoting BC’s clinical trials capacity, technology platforms, and expertise;
- Capacity development and training – Increasing province-wide capacity for conducting high quality clinical trials that meet strict ethical and regulatory standards;
- Enabling environment – Supporting clinical trials excellence, efficiency, effectiveness, innovation, and value for all stakeholders by advancing practices and processes;
- Patient/participant experience – Optimizing British Columbians’ participation in clinical trials by helping to remove barriers to participation; and
- Sustainability – Ensuring long term sustainability and agility to respond effectively to new challenges as they arise.
Clinical Trials BC’s leadership and operations will be embedded within the BC AHSN organization, where it will leverage existing resources and activities (e.g. BC SUPPORT Unit, BC Health Research Connection Project), plus add further support for regulatory consulting and business development activities.
You’ll also see Clinical Trials BC building on the success of the expanded professional development/education programs initiated in the past year, including the provincial membership to N2 Network of Networks, the Clinical Research Professional Certification Program (SoCRA), and ACRP e-learning.
BC AHSN would like to acknowledge the work of the Clinical Trials BC Transition Project‘s Steering Committee and Project Team. We also thank our stakeholders and organizational partners for their engagement and support. We’ll be seeking continued participation from the broader clinical trials community via an advisory group structure once the needs and skill sets are further defined.
This online service offers health care researchers a quick way of discovering if there’s enough information about people with certain health characteristics to support a research study, using just a single point of access.
With solid information about the data available, researchers can strengthen their research applications and increase their chances for securing future funding.
The service is also important for patients, because stronger research programs can lead to higher-quality research. This is key to better health care, offering potential benefits for everyone.
In alignment with its strategic priority to optimize British Columbians’ participation in clinical trials by helping to remove barriers to participation, Clinical Trials BC is currently consulting with BC researchers to share and validate findings from the recent national Clinical Research Participation Survey. More than 1,000 respondents across Canada completed the survey to tell us about why they either consented or declined to participate in a clinical trial, and how they felt about their study experience if they did.
This work kicked off last week with a well-attended event in Victoria (co-hosted with Island Health), attracting participants from Island Health, local community sites and BC Cancer-Victoria to share their insights and ideas for addressing barriers to clinical trials participation. The Vancouver Coastal Health Research Institute and Health Research Connections have also been consulted so far.
Over the next six months, Clinical Trials BC will be meeting with other health authorities and research institutions to discuss knowledge translation activities that would be of interest to their teams and departments. Island Health will also engage current or past trial participants (and those who declined) in a workshop during their annual research month, Five Days in May.
For more information or to get involved, please contact Alison Orth.
The Patient Engagement Methods Cluster successfully hosted the BC SUPPORT Unit’s very first Tweetchat on February 7, using the hashtag #PtEMethods.
The event, which explored the science of patient engagement, trended in Vancouver and was attended by Twitter users throughout BC and across Canada, the United States and the United Kingdom. The tweets in the hour-long chat were seen by more than 23,000 users.
March 21 webinar offers insights on patient-oriented research
The BC SUPPORT Unit invites you to join a webinar exploring a UK example of how patient-oriented research can arise from working with and listening to children and families.
Learning from UK Experience in Patient-Oriented Research (POR) focuses on how, through collaborative research, the presenters were able to examine real life and clinical issues identified in practice with children, their families, and practitioners. Presenters are Caroline Sanders, University of Northern British Columbia and Vicky Harris, Parent Researcher/mother and advocate for the parent voice.
The webinar is set for March 21 from noon-1:00 p.m. For more information, see the BC SUPPORT Unit’s Webinars page.
CISCRP webinar discusses patient engagement strategies for clinical researchers
On March 27 from 9:00 – 10:00 a.m. PDT, The US-based Center for Information and Study on Clinical Research Participation (CISCRP) will host a free webinar on meaningful and practical ways to add new tools to the clinical researcher’s patient engagement toolbox. CISCRP’s Jill McNair and Annick Anderson will outline the case for engaging patients as drug development partners, and explore tools for enhancing patient engagement in a truly significant way, including the use of Patient Advisory Boards, Patient Journey Roadmaps, and lay language summaries.